People are shocked into silence when I mention that I am aware that B is only here for as long as we get him. Why is it that people have such a hard time excepting that a child can die? I have found it interesting how easy it is for people to dismiss the notion that a child may not live a long life, people don't seem to want to admit that it can happen to someone they know and therefore it could happen to them. I remember clearly the conversation that I had with Kathy (wonderful G-tube nurse) when she was trying to bring up the idea of the Palliative Respite for B. She was trying to feel out how I felt about Braeden's life and when I was blunt with her about how Michael and I are aware that this sweet child is ours for as long as he'll stay for she was visibly relieved. It must be so difficult for the health professionals to have those conversations when the future is so unclear for a child.
|Chatting with CBC|
|Birthday Cake from CBS|