Friday 26 April 2013

Daylight

Day 2 and we're still at home!  It was a rough day, Mr.B goes from happy to very unhappy quickly when he's not feeling well so he was certainly in need of extra cuddles tonight.  The steroids seem to be kicking in but he still screams his way (breath-holding screams) through the inhalers like I am torturing him by making him breathe.  Poor Ashley had to leave the room because B crying makes her so sad for the 'always happy' boy she's gotten to know.

He has been asleep for an hour now (yes, I should be asleep too but I am just enjoying the blissful silence, listening to Mr.B breathe through the monitor and the oxygen machine whirring away beside me).  We just weathered a huge coughing episode when I went in to turn off his feeding pump (huge benefit to g-tubes, feed while baby sleeps!).  I guess the coughing is good, he's moving stuff out of his lungs but it is so hard to hear.  He wouldn't settle back down after the coughing, (no surprise there) so I sang him 'our' song, "Daylight, by Maroon 5".  Not necessarily the best or most orthodox of lullabies but for some reason it just clicked with us and he smiles his sweetest smiles when I sing it to him.  It was on the radio a lot the last time B was in the ICU and I bawled listening to it one night as I was driving home, leaving my child to sleep alone (so that I wouldn't have two other stressed-out children).  It is rather morose (which seems to go with my general mood lately), I guess when you listen to it in the context that I do, it being our last night together, but it soothes us both (and who doesn't love Adam Levine?).  He was snuggled with one of his knit blankies, thumb in mouth and kept turning to look at me and smile as I sang to him....how can you NOT love this kid??






The not-so-great news is that Michael and I are both running fevers tonight, double sigh.  The wonderful news though is that we had 22 degrees here today and I finally got to open all the doors and windows and aired out this 'sick' house!  What a glorious feeling it is to breathe fresh, warm spring air in the house!

The plan is for a 'quiet' family weekend, fingers crossed on that one! 


 "Daylight"
- Maroon 5

Here I am waiting, I’ll have to leave soon, why am I holdin’ on
We knew this day would come, we knew it all along
How did it come so fast
This is our last night, but it’s late and I’m tryin’ not to sleep
‘Cuz I know, when I wake I will have to slip away

And when the daylight comes I’ll have to go
But, tonight I’m ‘gonna hold you so close
‘Cuz in the daylight, we’ll be on our own
But, tonight I need to hold you so close

Oh whoa, oh whoa, oh whoa
Oh whoa, oh whoa, oh whoa

Here I am starring, at your perfection in my arms; so beautiful.
The sky is getting bright, the stars are burnin’ out.
Somebody slow it down.
This is way too hard, ‘cuz I know when the sun comes up I will leave
This is my last glance that will soon be memories

And when the daylight comes I’ll have to go
But, tonight I’m ‘gonna hold you so close
‘Cuz in the daylight, we’ll be on our own
But, tonight I need to hold you so close

Oh whoa, oh whoa, oh whoa
Oh whoa, oh whoa, oh whoa

I never wanted to stop, because I don’t want to start all over, start all over
I was afraid of the dark, but now it’s all that I want, all that I want, all that I want

And when the daylight comes I’ll have to go
But, tonight I’m ‘gonna hold you so close
‘Cuz in the daylight, we’ll be on our own
But, tonight I need to hold you so close

And when the daylight comes I’ll have to go
But, tonight I’m ‘gonna hold you so close
‘Cuz in the daylight, we’ll be on our own
But, tonight I need to hold you so close

Oh whoa, oh whoa, oh whoa
Oh whoa, oh whoa, oh whoa
Oh whoa, (yeah) oh whoa, (yeah) oh whoa (yeah) (yeah)
Oh whoa, (yeah hey) oh whoa, (yeah hey) oh whoa

From Our Home to Yours...

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